Lupus Fatigue can be influenced by everything: depression, pain, quality of sleep, quantity of sleep, exercise, severity of illness, and satisfaction with your social support network - as well as flares, medications, and stress. And it varies from one patient to the next. Because fatigue arises from so many different factors, treatment would be quite difficult and would have to take into account the many factors that cause fatigue. So, It is suggested that doctors and patients work together to treat-modify - change ALL of these factors in an effort to subsequently treat the fatigue.
Also, it should not be overlooked that most patients with physical fatigue also suffer from mental fatigue (can't think straight, forget things, can't concentrate). Mental fatigue can be a sign of cognitive issues with Lupus which can, in turn, cause physical fatigue. Also,
It is no surprise that people who are in pain have poorer sleep and thusly more likely to have physical fatigue. As such, the consensus amongst doctor is to treat the underlying disease (lupus) which will, by default, treat the fatigue. So, no, there is no specific treatment for Lupus Fatigue. There has been no drug that has proven to be effective in countering lupus fatigue. Patients are often left to themselves because there is not a lot of evidence or any clear ways for doctors to help patients with fatigue.
Most doctors are just as confounded by it as we are. A Lupus patient can be doing well, their kidney problems resolved, no other major symptoms, etc. but still have profound fatigue and doctors do not understand why.
I found this article which I thought was helpful to me: " Fatigue is profound. It touches you to the core. It can totally disrupt your life and Fatigue itself can be stressful and fatiguing. Because you cannot "see" fatigue, and it can change so much from hour-to-hour and day-to-day, your fatigue can also be confusing to those with whom you live and work. But it's not something you can point to like a swollen joint or a rash. You can be exhausted with fatigue and your friend or family member says, "You look great." This can be very frustrating. You feel that others just don't get it. Over time, see if you can learn to respond comfortably and assertively to such comments. "I wish I felt as great as I look - but I'm really fatigued right now, and it's important that I rest and take care of myself." Those words may not be right for you - but you need to find the words that are. Because when fatigue hits, you need to let go and rest. Give in to fatigue when necessary - so you can spring back. Take that temporary break - so you can stand up and think clearly later. Whether it's an hour later or a day later doesn't matter. You will find the right moment. And only you can. Because lupus fatigue is different for everyone - what causes it, when it hits, what helps, when it goes. Be kind to yourself, find a doctor that you can work with, and you will find the path that's best for you. Just don't give up."
Please try putting "fatigue" in our search term so that all posts on that subject come up. Many of our members have talked about ways that we cope with our fatigue. I hope that you find a way to cope with and manage your. I wish you the very best.
Peace and Blessings
Last edited by Saysusie; 08-06-2014 at 12:26 PM.
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