Everything you have said sounds like me the only thing that is different is I am always sun sensitive. The advice that I have to offer is that you write all your symptoms down. I always thought that I would remember and I wouldn't have write them down but as soon as the appt. came my mind would go blank. I have a spiral notepad that I write everything down on and I take it to the appt. so I won't forget anything.
Your children will understand, it was very hard for my son but now he is my best helper.
Your friend in Texas, Jessica