I'm so sorry about the situation that you're in. I am fairly new to lupus (almost 3 years). My son was 13 when he was admitted to the hospital in renal failure due to lupus. His symptoms started with fatigue and joint pain and progressively changed over the next few months. Gaining weight without eating was one of the final straws. He spent 7 weeks in the nearest children's hospital. Went through hell while he was there. Now, he is doing GREAT! In remission and feeling good. We didn't have specialists in our local hospital but we were lucky enough to have a few gp's that recognized that things weren't right and sent us on to a bigger hospital. The bigger hospital closer to us doesn't have pediatric specialists that he needed so we had to go 2 hours away from home. I wish I could give you insight on tests that should be done. My son sees a pediatric nephrologist (he has lupus nephritis) and a pediatric rheumatologist. Those are the main ones he sees unless there is something "small", then he goes to his gp (which just retired so we now have to find a new one!). Good luck! I hope you get some much needed answers.