I'm sorry if this is a dumb question..., but does anyone ever go off medication for Lupus? Or is this a life long 24/7 medication? My doctor said mine was "mild-ish", and didn't have worries about it affecting my organs (but said we'd check it every so often) and that he recommend I took medication.. but never said what would happen if I didn't.

If I stopped medication would it eventually go to my organs.... or could it? From reading (I'm not sure how good the source is) it says that people with mild SLE live normal lives and some don't need medication. I might have a bit of a "flair" going on, at least for the past few years, but it's been completely disabling me. My question is once they get it under control and the "flair" is gone.. do they stop medication? ... And does the lupus side effects come back? But I'm confused because they say someplaces it isn't curable and other places claiming it is.

I'm sorry for the dumb question...