Hello Everyone. I am new to the site. I just learned of this site this evening. I have not seen a Rheumatologist just. I have had my first known major flare up. It was scary I have not felt that bad in a long time. I thought I was going to die. Now that I have been diagnosed I understand why I feel the way I do. I don't have much support that are familiar of the condition so to know that there is a site of people with similar feelings is great. My doctor did tell me about meeting but don't want to actually go to a meeting, at least not right now. I just wonder what to expect and how to deal with it.