Hi all

I am just joining tonight and hoping I will find some others who are taking Benlystra. I had my first infusion a couple of days
ago, and thought I was doing well with it and no side effects. Not quite, I see tonight!

I am having some fever and chills, nothing too horrible but I slept all day and don't really remember except I felt like the
enchanted princess who fell into a deep sleep. I just don't feel like myself, but I need to give it time, eh?

It really feels so isolating to have this awful lupus, and I know each and every one of you know exactly what I mean.

thank you for having a place for me to go