I'm a graphic design student in San Francisco. I am currently working on a project for an advanced level packaging design class, for which I will be designing a hypothetical line of pharmaceuticals specifically for people living with Lupus. I've done a lot of reading, but I'm interested in hearing more about the day to day experience of having Lupus from people who are actually living it.
I'm particularly interested in hearing about your routine with medication. Are there aspects of the routine that are particularly annoying? (For example: the bottle is hard to open, relevant information (like side affects or dosage) is difficult to access or read, the medication is difficult to administer, or is particularly unpleasant to take). Does adhering to the routine of taking medication get harder at times? Do your symptoms ever interfere with your ability to take medication? Are there vitamins or other supplements that you take on a regular basis that you find particularly helpful?
I'd really appreciate any information that you'd be willing to share with me, related to the questions above, or related to any other aspect of your experience that you wish was better addressed by the medical industry.
Thank you so much for taking the time to read this. I'd be so grateful for any insights you'd be willing to provide.