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Thread: Hello

  1. #1
    Join Date
    Apr 2014
    Ontario, Canada
    Thanked 0 Times in 0 Posts

    Smile Hello

    Hello, my name is Stacey and I am 26. I was diagnosed with SLE in November 2012 and have had some serious ups and downs since then. My main symptoms are joint and muscle pain, numbness and tingling in my hands and feet, sun sensitivity and fatigue. My rheumatologist has been trying to figure out the right meds since my diagnosis, we have tried: plaquenil, prednisone, myfortic and vimovo. I am still taking the plaquenil and vimovo but don't get all that much relief. The myfortic made me extremely ill and the prednisone had very little positive effect. Just last week he referred me to a new doctor who is listed as a "pain management & physical rehab" specialist. He has also decided to try me on Cymbalta (I was diagnosed with anxiety/depression in the fall of 2013 by my gp but with Paxil and seeing a therapist have been feeling much better in that area). He said Cymbalta has the added benefit of pain relief... or something. I was feeling a bit overwhelmed at my appointment. It seems that he is now thinking I may have something in addition to Lupus. Anyway, that's a bit about me

  2. #2
    Join Date
    Jan 2010
    Houston, Texas
    Thanked 1,757 Times in 1,220 Posts


    Hello and welcome to WHL! We are so very glad that you found us. I am so sorry you are having a hard time but sadly it often takes us a long time to find the right combination of medicines that work on what is happening in our body since Lupus is such an individual disease. Hopefully they will get it sorted out quickly

    please make yourself at home and I look forward to getting to know you

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~

  3. The Following 2 Users Say Thank You to tgal For This Useful Post:

    Saysusie (04-06-2014), Stace (04-07-2014)

  4. #3
    Join Date
    Nov 2001
    Victorville, California
    Blog Entries
    Thanked 1,128 Times in 743 Posts


    Hello and welcome to our family. As Tgal mentioned, sometimes finding the right combinations that treat our specific symptoms can take some time and experimentation. I am glad that you have a doctor who is doing all that he can to help you.
    It is quite common for those suffering from any auto-immune/connective tissue disease to also develop other auto-immune/connective tissue disease. I think that most of us have more than one overlapping illness occurring simultaneously. I have Lupus, Fibromyalgia, Raynaud's, and a few others. So, don't let this aspect of your illness frighten you too much. You are very lucky that your doctor understands this and is willing to try to treat you if you do have overlapping issues.
    We are here to help you as much as we can...I am glad that you joined our family!

    Peace and Blessings
    Look For The Good and Praise It!

  5. The Following User Says Thank You to Saysusie For This Useful Post:

    Stace (04-07-2014)

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