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Thread: Diagonosed with lupus

  1. #1
    Join Date
    Feb 2014
    Thanked 0 Times in 0 Posts

    Unhappy Diagonosed with lupus

    Hello I am new here. I was diagnosed with lupus about 3 months ago. I am 32 yrs old.2008 I noticed that my elbow would hurt when I would remove my shirt. Late 2008 side of my face started to feel tingling and sort of numb.2009 I started to have chest pain. 2010 I was at the mall when I started having chest pain and few hrs noticed I couldn't really swallow and couldn't breath so husband dial 911 and was told by dr that I was having a panic attack. I really didn't buy it because dr kept asking me if I was stressed or going through something I was like no I just wanted to go shopping but still told me I had a panic attack. That my oxygen level was fine. So prescribed me with pills. When I went back home I went to see my dr and was prescribed with another pill. When I started taking the pills that the dr would prescribe me that's when everything started. I was so depressed and wouldn't eat and couldn't sleep and didn't want to go outside. I just wanted to stay inside my room. Started loosing a lot of weight. I was really going insane. I went to go see my dr to let her know that the medication wasn't helping me at all it was just making me get worse. So she prescribe me with a medication that would basically knock me out I just decided to stop taking meds. I decided to go to church and get my mind busy with the word of god and believe it or not it helped me out with my depression. The funny part is that I believe the depression started when I started taking medication for my so called panic attacks.but anyways in 2011 I started having back aches and with time my body would get so sore that I wouldn't be able to walk we'll and do chores around the house. I would have fever probably every two wks with muscle pain. I would also have bad headaches and chest pains. In late 2011 I noticed my hair would start too fall out a lot and my hands would turn white or blue. I went to see a dr and was giving muscle relaxer. I decided to go see another dr. The dr did some blood work for lupus. Results came back negative. So I was truly going insane! I was in so much pain with fever.late 2012 I went to see another dr and told her I was in so much pain . Told her I had hard time walking sometimes and hard time sitting down. She did blood work and came back positive for arthritis. We'll around that time I moved so I went to see another dr an told her I was positive for arthritis . I had my previous dr fax over blood results . The funny part is that from getting positive results in late 2012 until I went to see my new dr I stopped having fever and bad body aches without taking any prescribed meds but still loosing hair and white/blue fingers. And pain here In there but was able to manage the took about 3 months wen I went to see my new dr. We'll i went to see a specialist for arthritis about 3 months ago and did blood work and came back positive for lupus.when I was told I had lupus I was confused because few it's ago when I was In so much pain with fever that I would even cry because of the pain the blood work for lupus came back negative and now that I don't get that bad it comes back positive. I noticed that many people with lupus are sensitive to the sun and get ulcers. I dont have or get any of those. My hands turn blue or white,muscle pain here and there, lost of hair,dry mouth,brain fog,get a slight of sunburn easily. I do have excessive gas that I have trouble breathing sometimes don't know if it could be because irritable bowl syndrome and get eye pain and headaches. Sorry for writing a long story I just want to share what I've been through and why I'm confused and I've been having a bad wk. I had to go to er because my right eye was in so much pain and was nauseated. Nxt day I start having excessive gas that had a hard time sleeping and the nxt day was still dealing with my gas issue . That night I couldn't sleep because again I felt
    Like I could breath because of the gas . Was feeling pressure and my stomach was rumbling so much that i started going to panic mode and now my left eye started to hurt a little :/ and now I'm here stil dealing with my gas and feeling depressed! Because I just get something new every day! It's either gas, headache, neck pain, eye pain, Chest pain! I read on a post that people
    With lupus go through depression so they should consider seeing a therapist. Do any of you go see
    One? Again sorry for my long story. Just wanted to air out.As of now I feel like I'm alone in this. My family doesn't know I was diagnosed with lupus.y husband is the only
    One that know. I decided not to say anything to my kids or fam member because first thing they are going to think its death. Right now I'm still wanting to learn a lot about lupus and keep my self
    Positive and be prepared for when I tell my family. If you read it this far I thank you so much for your time

  2. #2
    Join Date
    Jan 2010
    Houston, Texas
    Thanked 1,757 Times in 1,220 Posts


    First let me welcome you to the WHL Family. We are so glad that you decided to join us.

    One of the hardest things about dealing with this disease is that there is no "normal" to it. It attacks us l individually depending on which part of our body is being hit at the moment. There are things that are more common than others and you hit on many of those in your post. I am sure we will discuss those again and ease feel free to ask in the next post if there is something you have a question about but one in particular I wanted to discuss.

    you asked about depression. This is very common, either in short bursts or long term and there are several reasons why. The first is obvious. You find out you are ill, your life is turning upside down, financially you may not be sure what is going to happen, your family and friends may not be supportive or you may have spent months and/or years feeling like you were crazy just to name a few. Dealing with the external factors of what happens because of this diseases is enough to make people depressed. Medicines and therapy can do wonders and often are only needed for short periods of time

    There is another reason that depression can settle in though, a lesser known one. Sometimes this disease can attack the part of the brain that releases the hormones that stabilizes your moods and emotions just like it does every other part of your body (note too that we are often on many meds that can play havoc on our moods). Too often people with Lupus or AI DISEASES think that they are weak because they are depressed when in reality it is simply another sign of their illness.

    PLEASE never feel ashamed or weak for being anxious or depressed. No matter what the reason it is understandable and you have people that understand

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~

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