I haven't had it for most of my life, but I have lived with Lupus for over 30yrs now. I understand the fatigue which a dear friend described as "lying under a lead blanket". It can be debilitating and cause drastic changes in your life. Such is the heinous nature of this disease.
It is quite difficult for us to not get to the point where we just don't care anymore. But, it is important that we do not give up and that we fight to find our "new normal" so that we can enjoy some parts of our lives. We are here to help you to do that and to let you know that you are not alone. There is a wealth of information on this site and it is filled with people who are genuinely caring, supportive, and who want to help. I hope that you will allow us to do that for you!
Peace and Blessings
Look For The Good and Praise It!