Hi! I was actually logging on today to ask a similar question of the group. My doctor just mentioned Benlysta to me today at my appointment.
I've had a lot of success with the methotrexate and actually requested to stop taking it due to the rate of infection I've been pulling in. I feel like I'm sick all the time, but I feel good otherwise so its a win lose. My doctor mentioned the benlysta because she mentioned that its rate of infections is only something like 5%. I wanted to try and compare it to the methotrexate infection rate but methotrexate is so old that they havent really done any of those kind of testing on it and if they did, it wasn't recently.
Anyway, back to the point. I've heard a lot of negative things...all from the mouth of the rheumatologist whom wants me to take it. So I'm skeptical Ive heard its exspensive which all the new stuff is. I've also heard that it only showed marginal positive results in a certain select group of people. Apparently if you dont show a double strand dna you might not have any benefits. Its confusing and hopefully someone that's been on it for some time sees your post so we can both find out! I really dont like the infusion idea, but thats because I'm a huge baby and think shots burn.
I wish you the best of luck!