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Thread: Hello All!

  1. #1
    Join Date
    Nov 2013
    Thanked 0 Times in 0 Posts

    Cool Hello All!

    Hi, my name is Toni and I was diagnosed two months ago with Lupus. For two years my doctor said it was a mabey thing, even though I have a positive ANA and all symptoms on the Lupus checklist. Finally because of an insurance change I have a new doctor. First visit he diagnosed me with S'Jorens syndrome and second visit Lupus diagnosis. I started on Plaquinil, or however you spell it, and it seems to have helped. I'm so glad I've found this sight, sometimes I feel so alone in this. My husband is wonderful and helpful but doesn't like to acknowledge the "Lupus" thing. Denial I think. I'm looking forward to reading and sharing with everyone.

  2. #2
    Join Date
    Mar 2009
    Dallas, Tx
    Thanked 418 Times in 343 Posts


    Hi Toni,

    Welcome to WHL.
    I am sorry, that you were diagnosed with Lupus, but glad, that you had a diagnosis. Now you can start treatment.
    Your husband is pretty much in denial, but it does take time to get used to the idea, that the one you love, has this disease.
    We are here for you, if you have a question or just need to talk, or vent.

    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

  3. #3
    Join Date
    Jan 2013
    Thanked 34 Times in 23 Posts


    Lupus is a tough one to accept, I suggest you get your spouse involved as you read up on this. The more he learns the more he can understand and the better support he can be! I am so lucky because my BF had a family member who had Lupus,so he has been great....don't know how I would've made it through w/out him!

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