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Thread: Hello Everyone New Here

  1. #1
    Join Date
    Nov 2013
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    Default Hello Everyone New Here

    Hello All,

    I do not have a formal diagnosis of Lupus but I am very familiar with the desease. I have been diagnosed with IGA Nephropathy (auto-immune) and blood clotting disorder (anti-philo something or other) so I know I am susceptable to other auto-immune diseases. When I first presented with symptoms and a positive ANA by PC doc thought I might have Lupus (runs in my family as well as MS and other auto-immune disorders). I think the rheumotolgist just dismissed my other sympotms because I did not have the buttlerfly rash and my ANA at that time was normal.

    Right now these are my symptoms;
    Achy, sore hip joints
    Achy neck and back muscles
    Tingly arms that feel heavy and sore (really bad in the last two months)
    headches (will not go away with 2 tylenol)
    Chest pains off and on (feel like a person with a really boney finger is poking me)
    Dry, scaly, flaky scalp (not sure if this is a symptom of lupus or not)
    Extremem Fatigue no matter how much rest I get (off and on for the last year)

    So my question is should I ask my doctor for a full blood work-up? I really believe there is something more than the IgA going on with my body.
    Any advice is appreciated

  2. #2
    Join Date
    Mar 2011
    pinjarra, western australia
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    there is nothing wrong with asking for a full blood workup .......

    especially as you have other known medical issues.

    it is common to ask for a full workup every 12 months.

    btw. welcome to we have lupus.
    it is not and will never be a pre-requisite to have lupus to be here.
    When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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