Results 1 to 6 of 6

Thread: Does this happen to you??

  1. #1
    Join Date
    Jul 2006
    Location
    New Jersey
    Posts
    257
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default Does this happen to you??

    :?: I've been officially diagnosed with Lupus just 4 months ago. I'm beginning to learn about the disease. I've also become more aware of the symptoms that I have. I'm on CellCept and Prednisone. I'm so exhausted after a long day at work. I just want to sleep as soon as I get home. I noticed that every night, I end up falling asleep earlier than my usual bedtime, and I find myself waking up in the middle of the night around the same time to make a bathroom trip (to pee). Does that happen to anyone else? Are the meds. to blame? :?:

  2. #2
    Join Date
    Jun 2006
    Location
    Los Angeles
    Posts
    32
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Well i was diagnosed about a month ago and i havent worked since then.. but i remember when i did, as soon as i got home... i just KNOCKED OUT! I also wake up at 3 or 4 am just to Pee!Glad i'm not the only one! i dont think it's the meds... it's the Lupus - which i HATE! We have to drink a lot of water! So i carry bottles of frozen water around in my car with me!

    U know how they say people w/ Lupus should be getting alot of rest - at least 12 hours? Lately i'm ok with just sleeping like 4-6 hours! Even tho i do get tired around 3... i still cant sleep! And then (this has been going on for a few days now) i could stay up and not look tired at 12-2am! Weird huh? i'm hoping this Lupus is dying down a bit and i not be scared to go back to the beach!

  3. #3
    Join Date
    Aug 2005
    Location
    Golden, Colorado
    Posts
    466
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    When I was working, I would come home and sleep wake up about 10 for a couple hours and go back to sleep, and THEN I would sleep THROUGH my weekends!

    I am also on CellCept and Pred...

    "All sounds are potentially dangerous.
    All sounds are potentially medicinal.
    All sounds are beautiful." ~Yoko Ono

  4. #4
    Join Date
    May 2006
    Location
    Westfield, MA
    Posts
    21
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    I'm not sure about the bathroom trip, but the other is normal. I was diagnosed 7 months ago, and at first it was horrible. I was in so much pain and so tired that as soon as I got home I would go to bed and sleep till morning. I lost a lot of weight during this time. It is getting better, but I am not working now because it just got too hard. Rest when you can and give the medicines time to work. Keep hanging in there!!!!!!
    Angela Sears

  5. #5
    Join Date
    Jul 2006
    Location
    New Jersey
    Posts
    257
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default

    Gosh, another long day of work. I'm so tired that Im going to skip dinner and just go straight to bed. I'm exhausted! During the work day, I try to take breaks often and sit when I can. But there are days where I wake up feeling so sluggish and tired even with 6-7 hrs of sleep. Its a type of fatigue that sleep and rest can't fix...

  6. #6
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
    Join Date
    Nov 2001
    Location
    Victorville, California
    Posts
    7,713
    Blog Entries
    9
    Thanks
    1,575
    Thanked 919 Times in 582 Posts

    Default

    It is called a Debilitating Fatigue and many of us know it all too well! No need to explain how it feels here - we are living with it too and also trying to get some recuperative rest :?

    I wish you the best
    Saysusie

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •