I am also sorry that you are suffering so greatly without definitive answers. It sounds as if the doctor at the hospital was much more willing to help you than the neuro was. At least he was intelligent enough to know that your bloodwork could change because the disease, itself, changes. However,the neuro was right, it might be good for you to see a rheumatologist (hopefully one who knows about Lupus) and have your bloodwork done again.
We are here to help you in any way that we can. I wish you the very best and hope that you get some answers, or at least some effective treatment.
Peace and Blessings
Look For The Good and Praise It!