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Thread: Another drug to add to the mix - feeling pretty toxic

  1. #11
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    I take 1500 mg cellcept twice daily due to an elevated anti ds-dna level which doesn't seem to care what meds or how much I take to control it.
    As the cellcept does not seem to be having much effect my ruhemy questioned me at great length to insure I was taking my meds correctly.
    According to him the warning/direction to take cellcept an hour before or 2 hours after eating has to do with proper absorption not concerns over possible upset stomach.
    In other words if you don't follow the label directions it may not work as well or at all!

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    a few comment about food and medication ...

    the main reason we take medication with food. is to reduce the side effects. (nausea)
    when these medicines are mixed with our stomach acids..... there is a high possibility of reflux.

    the reason we cannot take dairy with some medicines is again due to chemical reaction.
    anyone on thyroid medicines also have to not have milk.
    it is not unusual to have this type of instruction.
    When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

  3. #13
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    Im so confused over this, I checked my label and it just has a warning about the dairy consumption but nothing about food. I double checked with the hospital pharmacist and then the consultant and they said I could.

    However, I do like eggs for breakfast so have taken to getting up an hour earlier and taking it on an empty stomach. My dose gets doubled on Thursday so i shall see how it pans out.

    But honestly, the only warning on the label is about not taking it with dairy produce. I am wondering if they are up to date with medicine info in Australia, because it does concern me that they said I could take it with food to reduce the risk of an upset tummy.

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    Hi,

    I just found out I had Lupus today. And have done a lot of internet research today, to say the last! I agree with above-It appears to me that some of the drugs for treatment of lupus may have side effects that are worse than the symptom being treated. I plan on fighting this, and was wondering how long does everyone's remissions last, and are the flare ups longer than the remissions in general , or is everyone very different regarding times of flare ups and remissions.

  5. #15
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    Quote Originally Posted by Corella View Post
    Im so confused over this, I checked my label and it just has a warning about the dairy consumption but nothing about food. I double checked with the hospital pharmacist and then the consultant and they said I could.

    However, I do like eggs for breakfast so have taken to getting up an hour earlier and taking it on an empty stomach. My dose gets doubled on Thursday so i shall see how it pans out.

    But honestly, the only warning on the label is about not taking it with dairy produce. I am wondering if they are up to date with medicine info in Australia, because it does concern me that they said I could take it with food to reduce the risk of an upset tummy.
    You should contact the company that makes the medication. They should be able to tell you.

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    Contacting the company is a great idea. Let's be honest, most of us have been to different rhuemys that told us different things. It is part of the problem with this disease (all AI diseases actually but especially this one). Since there is no actual test for it each doc makes the final decision on their own criteria and over time they tend to do the same with meds based on what their patients say. I have a seizure med that mixes badly with almost EVERYTHING but few of my docs have a clue which ones. I learned quickly to ask the pharmacist or call the drug company for info and/or special instructions. It really does help
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  7. #17
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    I had a good read of the printout that the hospital gave me about Cellcept, on the section on 'how to take your Cellcept', it states 'Cellcept can be taken with or without food'.

    So I am going to go on that I think, especially as the specialist and pharmacist backed it up - perhaps things have changed, I dont know.

    But what I do know is this morning when I took it on a completely empty stomach - I was in agony for hours afterwards and know for sure, I cannot take on an empty stomach again, it was like something ripped the lining off my stomach, it was awful.

    It also said about spacing the dose exactly 12 hours apart, I am going to have another good read of the literature.

    Thanks everyone xxxxx

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    If the lit says it and it made you feel better then go for it! No need causing yourself more problems if not needed
    Mari

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