Hello and welcome to our family;
Unfortunately - that is the nature of the disease! Lupus does not affect everyone the same way and the disease, itself, changes within us. Thus, positive ANA and one drawing and negative ANA at another! Normal CPR at one drawing and High Levels at another. Symptoms can come and go, get better or get worse, and new symptoms can appear. The only thing that is constant about the disease is the fact that it changes and never appears the same way in anyone.
Many of us have discovered that we suffered from symptoms of Lupus for years prior to our diagnosis. Like you, I can go back to symptoms that I suffered from in Junior High School.
I am sorry that you have run into so many doctors who appear to be cowards. One of the things that we advocate strongly here at WHL is that the patient become educated about the disease, its treatments, its medications, its symptoms, and how it affects you personally. You may find that you will have to educate your doctors, demand certain tests, demand certain medications, and demand that they take you and your symptoms seriously. You will have to become your own health advocate and in order to do so, you will have to be more knowledgeable about the disease than most doctors that you will run in to. You can start by reading the "stickys" on the top of each forum..they are very educational and may answer some questions that you may have.
Also, please know that we are here to help you do just that - learn as much as you can and advocate for yourself. We are also here to support you because we certainly understand! I wish you the very best!
Peace and Blessings
Look For The Good and Praise It!