Hello and welcome to our family! I am so sorry to hear that you have been suffering so long with no definitive diagnosis. I am sorry to say that your symptoms are so very familiar to many of us living with and auto-immune/connective tissue disease. The lesions, plaques, hair loss etc. are symptoms that many of us have dealt with as some of the many rashes that people with Lupus develop. The inflammation, swelling of joints and so forth are also very familiar to us. If you had been diagnosed with Lupus, I would say that your Lupus is quite active and has been for some time.
Lupus (as with most AI/connective tissue diseases) changes within us. Symptoms come and go, the get better and then they get worse. Some symptoms disappear entirely only to be replaced by brand new symptoms. These diseases are ever-changing.
For many of us, it took months to years to get a definite diagnosis due to the changing nature of these diseases. Also, there are some who have never received a firm diagnosis and are told that they have MCTD (mixed connective tissue disease) or UCTD (Undifferentiated connected tissue disease).
It might be up to you to ask your doctors to start testing you for an auto-immune and/or connective tissue disorder. I always advocate that we must take control of our health care, educate ourselves about our illnesses and our bodies and demand that our doctors run appropriate tests and prescribe appropriate treatments.
While we cannot tell you that you do or do not have these issues, we can only say that the symptoms you describe are found in these types of disorders. I do wish you the very best and I hope that you and your doctors are able to find an answer and a treatment for your issues.
Peace and Blessings
Look For The Good and Praise It!