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Thread: Newbie

  1. #1
    Join Date
    Jun 2013
    Thanked 0 Times in 0 Posts

    Unhappy Newbie

    Hi All,

    I have never posted on a forum before so Im alittle nervous and surprised that I'm doing it, if that makes any sense. Obviously something is going on with me, which I think might be lupus, but Im not sure yet. I'll give you all a little run down. A couple of weeks ago I had a blood tests run just to see if I was going thru menopause! Lol, funny to me because I found out that Im POST menopausal at 43! It's the first time I've ever had labs done, other than ones that they do with pregnancy.

    The issues I thought were related to aging might just be something a little more serious. My symptoms that have really kicked into high gear in the last 9 months are these: severe dry eyes, dizziness, hot flashes w/burning feeling of face, head tingling, these little scalp bumps that kind of pop if I run my finger over them then burn afterwards(had these on and off for years), hairloss around the hair line on neck and temples-loose it then comes back- i think it comes and goes with the little sores, rash on face that has come and gone-now is back with almost a brown age spot tint to it, not bad can cover with makeup, and last but not least i have sores on my chest, just a few..looks almost like chickenpox sores.

    What had been bothering me the most was the eye dryness so i started looking into that because I have what they call "lattice" right eye- it gets real and burns so thats what started me doing some research. After some digging I found that there might be a link between lattice and sjogrens so i started looking into that-the dryness and sun sensitivity but then it had a graph that sjogrens can be overlapped with sle, so guess what, i looked into that! lol. Let me tell you, it was like a light was turned on! I found myself thinking "omgoodness, this is me". It's been a little overwhelming, but I also have a sense of "well that explains this and that".

    So back to my labs..I'm alittle confused on the whole ANA test which came back positive, titer was 1:40 and the only antibody listed positive was ds-Dna a 1. Everything I've been reading says that this is negative so Im puzzled why it's positive?? Any clues? Also, my wbc came in low at 3.4 and low neutrophil at 1.3..this is what makes me the most nervous. The most consistent thing I've had for years is muscle pain, which has gotten worse in the last year..other than that the other stuff comes and goes. I made an appointment with a rheumatologist, appt isnt till Aug. Any thoughts or comments would be appreciated. Thank you all for such an informative website. I don't feel so alone.
    Last edited by rob; 06-08-2013 at 10:31 PM.

  2. #2
    Join Date
    Mar 2011
    pinjarra, western australia
    Blog Entries
    Thanked 1,844 Times in 1,279 Posts


    hi tonya, and welcome. please read some of the older posts ....... they are our personal experiences with lupus and other immune disorders. the search function is very good on this site, you should find it useful. again welcome
    When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

  3. #3
    Join Date
    Jan 2010
    Houston, Texas
    Thanked 1,757 Times in 1,220 Posts


    Hi and welcome to WHL. We are glad you are here. The first thing I want to say is try not to freak out. Lupus symptoms are very general (that is why it is often hard to get diagnosed) so even people without it may have many of the symptoms. Having said that, I am glad you are going to see a specialist. Make sure that the rhumey specializes in autoimmune and not just arthritis. You want to go to someone who know what they are looking for

    there is no actual test for Lupus. It takes a Dr. That is willing to sort through your symptoms and lab work to find and then discount all other possibilities for the symptoms. Don't be surprised if you don't get an answer the first time you go. It may take a little while. I would suggest typing up a 1 page sheet of your history to hand to the doc when he comes into the room (not the nurse or it will go in your chart). Many of us have found that helpful.

    please make yourself at home and know that we will be here for you throughout this process

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~

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