Page 1 of 2 12 LastLast
Results 1 to 10 of 11

Thread: Why do you think you have lupus?

  1. #1
    Join Date
    Mar 2011
    Location
    Montana
    Posts
    495
    Blog Entries
    1
    Thanks
    279
    Thanked 255 Times in 144 Posts

    Default Why do you think you have lupus?

    That was the question the pulmonologist asked me the other day. I'm not kidding. The backstory: I've posted about my pneumonia not fun. Well last week I met with my regular pulmonoligist for a followup and the bad news is that nothing has changed so I'll be having a lung biopsy tomorrow. I had to meet with a different pulmonologist this week who will be doing the biopsy. This guy looked over my charts ( a very thick chart at that) and flat out asked me "why do you think you have lupus?" EXCUSE ME????? It was soooo hard for me not to give a smartalek reply. Instead I told him that I THINK I have it because the rheumatologist told me I have it and if I really don't have it, then someone has some serious explaining to do!

    WHY DO I THINK I HAVE LUPUS?!?!?!? What kind of question is that??? It's in my charts for pete's sake! I don't just go around claiming to have diseases I really don't have!

    It went downhill from there. The pneumonia or whatever it is going on in my lungs has not improved AT ALL. Doc asks me if I smoke. NO! Ever smoke? NEVER! Are you sure? Come again? I've gotten into trouble because I'm an antismoker and I don't mind telling people to put their d#@* cigarettes out. I don't appreciate him not trusting that I was telling the truth. I told him that I did grow up with a carton and 1/2 a week smoker but I moved out over 25 years ago. 2 years ago, my chest xray was clear so whatever is going on has been recent.

    Keep your fingers crossed for me that the biopsy doesn't bring bad news. I'm supposed to get the results early next week.
    "I'm going to get healthy or die trying"

  2. #2
    Join Date
    Jan 2013
    Location
    alabama
    Posts
    19
    Thanks
    6
    Thanked 4 Times in 4 Posts

    Default

    I am sorry you had this experience with the pulmonoligist. I hoe you receive good news from your biopsy.
    Luci

  3. The Following User Says Thank You to luci For This Useful Post:

    ruziska (05-23-2013)

  4. #3
    Join Date
    Mar 2009
    Location
    Dallas, Tx
    Posts
    1,859
    Thanks
    145
    Thanked 411 Times in 337 Posts

    Default

    What an idiot. You should have educated him by telling him, that not just cigarette smoke is to blame for lung problems. There are hundreds of reasons and the environment is one of the reasons.
    I am crossing my fingers, for your biopsy.

    Debbie
    I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).

  5. The Following User Says Thank You to debbie-b For This Useful Post:

    ruziska (05-23-2013)

  6. #4
    rob is offline Super Moderator Super ModeratorEmperor of the World
    Join Date
    Feb 2008
    Posts
    3,681
    Thanks
    426
    Thanked 1,105 Times in 628 Posts

    Default

    I had that exact same question asked of me by a new rheumo a couple of years ago. He was one of the most arrogant and obtuse rheumo's I'd ever met.

    Why do you think you have Lupus?

    I turned around and asked him why he think's he a competent Rheumotologist.

    I had to go on and explain to him the difference between thinking and knowing. I don't think I have Lupus, I know I have Lupus you frakking nitwit, and if you had taken 5 lousy minutes out of your busy schedule to look at my medical records sitting right there in front of you, you would know this too.

    He just looked at me dumfounded. It did not get any better, and after suggesting that his medical license came out of a box of crackerjacks and asking if his mother had any children that lived, I walked out.

    A couple of weeks later, I saw one of the nurses who was in the office that day, and she said the whole office heard my little tirade, and they were laughing and loving every bit of it. Apparently he was disliked by both his patients, as well as his staff.

    He was gone not long after, moved on to greener pastures I guess.

    Anyway, good luck with the biopsy, I hope you get get good results.

    Rob
    Last edited by rob; 05-23-2013 at 09:47 AM.

  7. The Following 4 Users Say Thank You to rob For This Useful Post:

    BonusMom (05-24-2013), ruziska (05-23-2013), Sammy (06-03-2013), Saysusie (06-04-2013)

  8. #5
    Join Date
    Nov 2011
    Posts
    466
    Thanks
    314
    Thanked 317 Times in 192 Posts

    Default

    LOL - answer that with "Why do you think you're qualified to question the diagnosis?"

    What a turd....

  9. The Following User Says Thank You to SleepyInSeattle For This Useful Post:

    BonusMom (05-24-2013)

  10. #6
    Join Date
    Mar 2011
    Location
    pinjarra, western australia
    Posts
    2,918
    Blog Entries
    1
    Thanks
    1,394
    Thanked 1,617 Times in 1,107 Posts

    Default

    your animal character at the moment is rabid pit bull............ maybe we should have unleased you (just kidding as you know). although I do love robs response. I will be thinking of you over the next week..... hope you get answers that are repairable.
    When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

  11. #7
    Join Date
    Jan 2009
    Location
    Sylvania,Ohio
    Posts
    1,409
    Thanks
    79
    Thanked 70 Times in 58 Posts

    Default

    I've heard THAT ONE before! More than ONCE! I can relate unfortunately! SORRY YOU have to go through it too! One of my Drs actually said "so, WHY do you THINK the sun "bothers" you?" WOW, REALLY!!!! As I sat there FLARING rashes and ALL!!!! I should have thrown up on him!! LOL If Im in the sun too long i vomit, so I should have stood outside a little longer before going into his office!
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

  12. #8
    Join Date
    Dec 2009
    Location
    Atlanta Area - Dacula and Boca Raton
    Posts
    1,814
    Blog Entries
    12
    Thanks
    379
    Thanked 402 Times in 325 Posts

    Default

    I heard that from my rheumy the 3rd visit. I said look at my history then tell me I don't. She never questioned her diagnosis after that.

  13. The Following User Says Thank You to Nonna For This Useful Post:

    BonusMom (06-10-2013)

  14. #9
    Join Date
    Dec 2012
    Location
    I live in the Midwest.
    Posts
    26
    Thanks
    11
    Thanked 5 Times in 5 Posts

    Default

    My ex-GP would ask me, "To what do you attribute your symptoms?" Drove me crazy! Thankfully, he finally sent me to a neurologist who didn't ask me to diagnose myself.

  15. #10
    Join Date
    Apr 2012
    Posts
    6
    Thanks
    1
    Thanked 0 Times in 0 Posts

    Default

    Many years ago, when my dreaded illness began, I went to a rheumatologist in TN looking for answers. I took a long list of symptoms documented with dates attached, sort of a sick journal. This young rheumatologist looked at my hands and said, you don't have anything. Maybe Fibromyalgia. I saw him take the list back and watched him as he looked at it and laughed with a nurse. Ummm..okay. That response was devastating. As time went on I was suffering from horrible flu like fatigue, dry morning coughs, pain in my hand joints during weather changes, foot pain and lung pain. I finally found a good rheumatologist, but she says I only have RA. I'm sure I have something more. My lab work only reflects high CRP but something just isn't right. I was on Plaquenil for 4 months. During the 3rd month my hair started falling out. Is this normal? I also just had a baby 5 months ago. My rheumy thinks my hair falling out is hormonal since I also had started an new BCP around that time. She says my dry cough isn't related to my RA and neither is my lung pain. I don't know what to do. Has anyone else had this experience? Does Plaquenil cause hair loss??? I'm so lost and depressed. I feel your pain with this pulmonologist. They think if your symptoms don't fit their expectations, they just write you off. It is exhausting being ignored and treated as an ignorant idiot. We know more about lupus and rheumatoid arthritis than most doctors! Why? Because we want to be well and we research research research! Doctors have so many patients they don't have time to do this. I guess we just have to keep being our own advocate....good luck. And if anyone has any answers about my symptoms or hair loss, please share!
    Last edited by supersleuth; 06-07-2013 at 07:06 PM.

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •