I am so new to this ... I have been fighting this big nasty (MCTD/Lupus SLE/polymyostic arthritis) since I was 12 and I am now 32. I have been doing great up until lately. I work full time and sleep all weekend - not much of a life, I know. As of late, the pain has become unbearable - I feel like my bones are breaking and my skin burns all the time anymore. I do not mean to complain but it seems to be more than what I can handle. I am on the standard cellcept/plaquenil/prednisone but to be honest, the medication is no longer helping.. I still seem to continue going into this downward spiral of sheer hell. Anyway - hi!