Welcome to WHL. I am so sorry to hear that you are dealing with this disease while trying to raise five children. I am very happy to know that your husband is so supportive. That actually makes it a bit more bearable. We've all had to deal with those who don't believe that we are sick unless we look like we are on death's door, in a wheelchair, deformed, full of open woulds and/or sores, or crawling on our hands and knees. It gets to be very aggravating at times. So, we often just tell people that we are "OK", just to avoid their callousness.
But, we do understand what you are going through and how difficult this disease can be. We are here to help you in any way that we can and as much as we can.
Also, WeHaveLupus is also on Facebook if you want to just chat with others who are living with this disease. It is also run by me!! Here, we provide research, support, answers, advice, and compassion. So, you will get the best of me in both places (lol). Again....welcome!
Peace and Blessings
Look For The Good and Praise It!