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Thread: Why do you think you have lupus?

  1. #11
    Join Date
    May 2013
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    Supersleuth,
    I completely understand. I had a similar list I presented and the doc just sneered at me and said it was all normal. I had had too many babies in too few years and that I should eat more protein and rest better. I was devastated, I didn't go to a doctor for years. Then suddenly my vasculitis went nuts on my feet and legs and I panicked and begged for a different referral.
    We really do have to be our own advocates. I hate feeling like every time I talk about lupus I have to defend myself as well. People don't understand. Sometimes you have to take ALL the symptoms seriously and search yourself for every single sign. I still feel like I'm just making a fuss, most of this I deal with privately and then share the 'edited' version of what I find.

    Jx

  2. The Following User Says Thank You to Jaynie For This Useful Post:

    Chloe (03-14-2014)

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