Results 1 to 2 of 2

Thread: Ok Now I am confused

  1. #1
    Join Date
    Nov 2012
    Location
    Barrie, Ontario
    Posts
    18
    Thanks
    0
    Thanked 2 Times in 2 Posts

    Default Ok Now I am confused

    The GP thinks I have Lupus because my ANA and other tests came back positive
    The Rheumatologist does not think I have Lupus because it does not present as a standard Lupus case (all I have heard is it the disease of 1,000 faces cause everyone is different)-he thinks it is peripheral neuropathy and sends me to
    The Physiatrist-who confirms that it is a neuropathy but won’t say how I got it-high blood sugars?, thyroid issues, medications
    I google (what did people do before google-oh yay went to the library) Lupus and peripheral neuropathy-guess what 1-2% of patients with Lupus have peripheral neuropathy as their major “thing” caused balance issues, falling, muscle weakness.

    So what now-take this entire gamut of tests and get a second opinion-one of my sister's friends has Lupus and her Rheumy is apparently the top of his field. So ladies-now that I have had my pity party is there anything to be gained by having a diagnosis of Lupus or should I just stick with Lucie’s Disease ™

  2. #2
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
    Join Date
    Nov 2001
    Location
    Victorville, California
    Posts
    7,751
    Blog Entries
    10
    Thanks
    1,610
    Thanked 927 Times in 590 Posts

    Default

    EXACTLY! Get a second opinion. Like you said, Lupus does not present itself in the same way with everyone. You may have Lupus, you may have another auto-immune disease. But you do have a right to have an answer. So, I would make use of the option to get a second opinion.

    Best Of Luck
    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •