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Thread: Is it time for a new doctor?

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    Default Is it time for a new doctor?

    I saw my Rheumy this week for my 12 week follow up and it was very uncomfortable. He is an extremely intelligent man but I think he LITERALLY could not hear me. He asked me the same questions multiple times and we didn't get anywhere. I was asking him about these bone pains I have that are not in my joints and also these pains in my legs that feel like Charlie horses. He ran a CBC and kidney function and it was all normal but there still no explanation for my pains and this stuff HURTS it brings me to tears instantly. He hasn't put a final diagnosis on me I think because my RBC is never low. I have every thing else that points to lupus, positive/high Ana panel, arthritis, rash, raynauds, low C4 complement test... You name it. He has been in practice for 40 years and he has a hearing aid and I still think he did not hear me AT ALL. Is it time for a new dr?

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    Sammy (05-05-2013)

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    Yes! I'm personally at a point where I don't even know why I bother going to a doctor/specialist. It seems they don't take Lupus seriously and disregard us who have it as raving women. I've been suffering with symptoms for most of my life and finally late last year my first ANA blood test came back positive. I was dismissed yet again and told to come back in 6 months.

    WHAT is wrong with the medical field? Do they only believe men when they have pain. I'm one who HATES to go to the doctor and will avoid it at all cost so if I go... it means I'm damn sick.

    I'm dealing with it alone at the moment until my 6 month appointment is here in August. No idea why they really don't seem to care.

    Good LUCK!

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    Oh yeah you might need a new dr too. I think my dr was just def and couldn't hear my concern!!! I have to go in every 2-3 months I get so tired of going plus the medical bills can really pile in. Good luck with your struggle. If you don't mind me asking what led to discovering your condition? And I dodge the office at all cost but these muscle cramps are pretty extreme. I wonder if its fibro? I need to look into it

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    Is he in private practice or part of an HMO? If part of an HMO, you can speak to the head of the department and/or to member services to express your concerns. A doctor who cannot hear his patients should be a major concern to any practice and should be something that they are made aware of.
    I always say that, if you are not comfortable with your doctor, then-by all means- find one that you are comfortable with. You cannot participate in the management of your disease and/or the treatment of your symptoms if you are dealing with a doctor whom you are not comfortable with. And, not being heard (literally) is an issue that would certainly make me uncomfortable (lol).
    Best of luck and let us know how it goes.

    Peace and Blessings
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    Saysusie
    Look For The Good and Praise It!

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    On one hand getting a diagnosis isn't all its cracked up to be. Be thankful that you are dealing with "just"'joint pain and the like for now. Don't get me wrong. I know that is hellish. Been there, done that and not trying to diminish it. I just know that after years of a vague diagnosis I ended up being glad for that because it meant that my kidneys were holding up. BUT I had the advantage of having a doctor who was and is treating my illness as a real disease and who, out of earshot of insurers, calls it Lupus. So basically I do think you should be seeing a better doc, yes. If at all possible. Someone who is aware of modern understanding of fibro and autoimmune disease and how hard they are to pin down as well as how important it is to treat them with or without the L word diagnosis.

    If you can accomplish that by getting someone to talk to him about the hearing issue and stay with him, that's great. But if not...

    Good luck. I know it's a pain to look for a new doc and I lucked into mine by working in the medical community. But sometimes you have to go through two or three to find the one that works for you. I saw two others before dr. S and they really awful. Cruel, actually.

    Hope the typos aren't too bad. This site isn't set up well for iPhone.

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    Hey sorry for the late response I did find a new doctor I didn't feel comfortable with him at all. I went on a limb and lowered my dose by half and it helped take some of the muscle weakness away. I spoke to a pharmacist who told me to stop its a severe side effect lol later I added twitching/nerve jumps to the list. But he recommended another dr and she ran 26 test to make sure it isn't another AI which makes me more comfy. Make sure were looking at the right thing. I am not pressed about a diagnosis I am just glad they started treating me. Since they started my treatment in November I haven't had a single migraine which is a blessing for me I was having them on a daily. Come to find out a lot of his previous patients left his practice he was out sick alot and it was just time

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