Results 1 to 9 of 9

Thread: starting benlysta today :)

Hybrid View

  1. #1
    Join Date
    Jan 2013
    Posts
    73
    Thanks
    1
    Thanked 25 Times in 15 Posts

    Default starting benlysta today :)

    Hi there, wish me luck, as I am starting benlysta today. My dr. kept insisting on it. Let's hope it works! Especially with the fatigue, I've barely been able to keep my eyes open lately. I've read others trials with benlysta on here, but I couldn't find any that reported back after say, 6 months or so. Fingers crossed....

  2. #2
    Join Date
    May 2010
    Posts
    980
    Thanks
    57
    Thanked 309 Times in 250 Posts

    Default

    Best wishes and good luck with it Shanna. May it help you a lot, and cause negligible side-effects... |;^)
    "There but for the grace of God, go I."
    "... His mercy endureth for ever."

  3. #3
    Join Date
    Jan 2013
    Posts
    73
    Thanks
    1
    Thanked 25 Times in 15 Posts

    Default

    Knock on wood.... so far so good. Sure I've been tired and achy...but nothing more than what I deal with normally. Although, I've noticed more hair falling out the last couple of days. I'll update the further along I get.

  4. #4
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,518
    Thanks
    1,546
    Thanked 1,732 Times in 1,205 Posts

    Default

    Keep us posted! I have have heard some good reports and some not so good (like with all the meds). I am keeping my fingers crossed!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  5. #5
    Join Date
    Jun 2013
    Location
    Los Angeles, CA
    Posts
    8
    Thanks
    3
    Thanked 0 Times in 0 Posts

    Default

    good luck.

    my doctor tried to get me started on it, but I have no health insurance coverage so it was not feasible.


    please keep us posted.

  6. #6
    Join Date
    Jan 2013
    Posts
    73
    Thanks
    1
    Thanked 25 Times in 15 Posts

    Default

    Today I had my fourth treatment. They do cause some fatigue for a few days, but I'm used to that .now I'm on the one every four weeks schedule, and I do feel a little better. My blood hasn't shown any changes yet, but the doc says it could still take awhile, but I am doing ok on it so far.

  7. The Following User Says Thank You to Shanna For This Useful Post:

    steve.b (06-26-2013)

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •