Welcome katwoman! Sorry for your struggles. We all can relate. I've had lupus for 23 years now, diagnosed as a child. I've always had SLE. It is quite attracted to snacking on my kidneys with my flares. But over the last few years it attacks my muscles mainly in my upper back during my flare ups. My symptoms were bad at first then had a great period of remission for 9 years thanks to Cytoxan but then got married, dealt with normal people stressors: moved away, started working , started life. My dad was in the military at the time and getting called to Iraq and family members were starting to have babies and I wanted one too! So the perfect storm was created and now I basically flare every 2 years! Ugh!
So your description of going from military strong to jello is so understandable! I currently feel like I am 80 at 34 lol!
i had to go from working full time nights as a nurse to weekends in an infusion clinic tried my had then at full time occupational health and now am part time in case management. I work 4 hours a day and that's it! By 2 pm I'm spent! I can barely keep up with my house!
So anytime come join the frustration and vent! We are all here for you!! Feel better!
Diagnosed in 1990 at age 11.
Trust in the Lord with all of your heart!