welcome to the forum! we understand what you've gone through and are going through. Reach out to us anytime. It IS hard to explain to someone what lupus is like. Lupus has so many different dimensions to it making it hard to come up with a short and concise explanation. I tell people it is like a pinball. You never know where the ball is going to go next. At least that's true in my case. With lupus you learn to take life one day at a time and in some cases, one moment at a time. My husband puts it this way: "your lupus is like the Montana weather; it changes every 5 minutes:. He's right. Again, welcome to our forum and visit often!
"I'm going to get healthy or die trying"