ITP and possibly Lupus
This is my first post. My 19 year old daughter has ITP and possibly Lupus. She has a positive ANA, twice tested - both times positive.
The ITP right now is the most troublesome symptom and not well controlled.
She did try prednisone and IVIG. Both worked while she was on it but when tapered on the prednisone, her platelet count dropped. Then she tried Rituxan. But she developed a severe reaction to it after the second infusion and cannot have it again.
So my question is to those who have ITP. What meds are you on to control the ITP. Also, did any of you have a splenectomy and was it successful in controlling the ITP. Her hematologist is recommending a splenectomy now but her rheumy is against it.
Thanks so much. Hope to hear from someone.