I have Sle, my mom has Sle and autoimmune hepatitis and more than a dozen extended family members have other AI diseases. However just like you my biggest concern is my 11 year old daughter. She has been either in the single digits in height and weight or below the growth charts all together her whole life. She's had digestive problems, migraines starting at 6 years old, unexplained rashes and fevers and the all too common "growing pains" that keep her up and night and bring her to tears every few weeks. It's tough because last year we ran a full blood panel and her kidney numbers were slightly elevated, her sed rate mildly high and her ANA was 1:640! But even with all of that her pediatric rheumatologist refused to diagnose her and just said for her to come back in a year to be rechecked. I'm hoping so desperately that she doesn't have it...the guilt I carry of unknowingly potentially passing this horrible disease on to her is so painful. I would do anything to spare her from it. All I can do unfortunately is feed her the best nutrition, keep her well covered in the sun and just hope. Hang in there and keep us informed, were all here for you.
"Fortuna Favet Fortibus" ...Fortune Favors the Brave.
~ Diagnosed SLE Lupus, Endometriosis, Anxiety Disorder, IBS~
Meds: 400mg Plaquenil, Prednisone 6-day pack (for flares), 800mg Ibuprofen 3x day, Xanex (rarely), Vicodin (rarely)
Supplements: Omega 3/6/9 complex, 2000iu Vit D, Iron/B12, Calcium, Folate complex, Cranberry, Probiotic, MSM/Glucosamine.