Geraldine, I presume you are in the middle of SA, (600km to see a specialist), when your doctor gets the results from the last round of tests.... talk to him about sending the results to a rheumatologist. I believe there is a federal grant available to people who have chronic ailments for travel expenses to medical practitioners. so if you do have lupus, you should be eligible for a subsidy to cover your travel costs. centrelink is the department that looks after the grant.
When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.