Feeling flustered. Is this even working. Yes I'm whining I'm sorry. Do you or did you ever question you dx. I've been on plaquinel for year at 400mg and aspirin for the same length of time. This was prescribed for the petechia and purura and the dx of APS. New rheumy added cellcept after the dx do SLE and nephritis. I've been increasing my cellcept since Dec as of today I am to increase to 2000mg a day.
A few days ago I woke up with spots on my hip this is where they started. You can see scars from the biposies and they are always around those scars. Random ones on my under arms as well. Now this morning I wake up to even more. This patch is closer to my spine. The past few days I have been very tired and have been feeling muscle fatigue. Like just blow drying my hair my arms feel like they weigh a 100 lbs.
my jaw has been hurting as well. I have no idea if its related to anything or not. It is hard to open my mouth full range. I feel it in my ear.
I had a blood draw yesterday things looked good hence upping the cellcept. I did notice my WBC even though in range is on the low side and my eosinophils were high higher then the in range. Obviously the dr wasn't concerned but I have never had issues with WBC. My RBC, hemoglobin, and hematacrit have always been high higher then the normal range. Still those are high. I'm wondering if its the cellcept doing its job. Probably. I just don't see it or feel it.
I find it alarming to wake with purple spots on my body. I want it to stop as this symptom is what made my drs go into action finally. No clear answers from my biposies just more and more pills thrown at me. Thanks for letting me vent. I just needed to get it off my chest. Not sure what I'm looking for as I know there isn't a magic answer. As many of you know and deal with already its so hard to find people who understand your fears and frustration. My very best friend has almost shunned me. The last time I talked with her I felt myself forcing this happiness out of me that was fake but didn't want to dump my SLE woes on her. Seriously I have talked with her once since my dx. I was like everything is so great. Yhea right.
I wish I could wake up tomorrow and it would just be gone!