I was diagnosed with SLE over 6 years ago. I currently have Lupus, Raynauds, fibromyalgia, chronic fatrigue and lots of bursitis. It took me over 5 years to get SSDI, though it has a provision that I have to be reexamaned each November, because the Judge said lupus can be cured.
I have a one to two hour nap each day to get thru the day and I hurt in my joints all the time. My finger tips go numb alot, making doing my favoriate thing (quilting) hard. I haven't had a flare for a while, luckily. I'm just really tired of being tired.
I live in the mountains and don't see too many people. I really miss working for the social aspect.
Not sure what elst to say. I'm really new to chats/ message boards.