I've come to look in a few times. The lupus sites on Facebook are helpful, but I have family members who are less than supportive and I am tired of worrying about them reading and commenting on my posts. So Hello! It took me 14 years to be diagnosed. I've been on Benlysta for about 4 years as I am part of the study. It works great for me. Married with a dog. My main problem at the moment is neurological symptoms and the appearance of new problems on my MRI.