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Thread: Vitamins or supplements anyone?

  1. #11
    Join Date
    May 2013
    N.W. Mt.
    Thanked 1 Time in 1 Post


    I have found my answer to the suggested magnesium intake and dealing w IBS, topical magnesium.
    I have a written prescription for 10% magnesium cream compounded by a pharmacist, small amount applied in alternating places forearm where ever, helps wonderfully, actually better absorbed this way and great for the skin.
    No IBS or colitis irritation, no horrible spasms any more. No weird fillers to react too. Nice.
    Want to make God laugh, tell him your plans...

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    Saysusie (07-11-2013)

  3. #12
    Join Date
    Jul 2013
    Tampa Bay, FL
    Thanked 30 Times in 19 Posts


    To clarify before I begin my rant - I have and recommend to evereyone else to discuss all vitamins and suppliements with your doctor.
    Now the ranting part. Doctors are not trained - not even one course - on nutrition, it is not required to become a doctor.
    My primary care is concerned about my iron levels, and when I tell him I am a vegetarian, he tells me to go eat liver - really? Non animal liver... Duh. So after years of anemia he finally refers me to a hematologist.
    My neurologist said I should be taking vitamin d3 5000 once a day, and a vitamin B12 suppliement, both levels were a bit low.
    My rhumatologist has decided if I fall below 10 of my iron bloodwork I will get transfusions. Until then, try to get more iron from food, but he can't tell me what to do differently because he doesn't know nutrition - he said that. I guess I appreciate the honesty. He does have me on Medrol for the inflamation, Methotrexate (and subsequent folic acid) for the SLE, and Phentermine for the fatigue and a nice buffer to the side effect of the steroid of wanting to eat all the time. He also said my vitamin B12 levels were fine off the same bloodwork that the neurologist told me were low.
    My hematologist is on the same page with the Rheumy about the transfusions, so yea! But he wants me to take a vitamin C suppliement with my meals to help absorb more iron from my food. He also wants me to take a daily folic acid instead of just the day after my methyltrexate. However upon his recommendations I looked up some info and taking or having too much folic acid can cause colon cancer (I have already had precancerous polyps removed at the ripe old age of 32) and too much folic acid can cause the methotrexate to not function. I'm certainly not taking this horrible toxin to counter act it's effects.
    So, of my 3 doctors, they are all on different pages even just interpreting the blood tests, and telling me what I need. So, while I trust my Rheumatologist the most, really I trust none of them. I am considering seeing a certified nutritionist, getting their recommendation and taking that back to my Rheumy to make sure none of it reacts with my meds.
    Until then the vitamins I am taking are:
    Vitamin B12
    Vitamin D3 5000
    And Vitamin C
    And the folic acid only the day after my methotrexate as perscribed.

    This vitamin business is tricky stuff, but I suppose if we as humans weren't looking for the easier, faster, cheaper way to eat we probably wouldn't be in many of the messes we are in now.

  4. The Following User Says Thank You to Abbyrition For This Useful Post:

    SleepyInSeattle (08-17-2013)

  5. #13
    Join Date
    Nov 2011
    Thanked 318 Times in 192 Posts


    It is frustrating, but the way I see it, nutrition is pretty complicated - it makes sense to see a specialist about it, the same way we usually need to see specialists about our Lupus (instead of just seeing a GP), an ophthalmologist for our eyes, a neuro for brain/migraine issues, etc.

    It's another office visit and co-pay to add to the list, but well worth it, in my opinion - especially if you are also dealing with dietary restrictions (like being a vegetarian). Good health begins (and can end) with nutrition - if you don't have the right fuel, you CAN'T be healthy - so it's worth it.

    I have seen really wonderful effects on my overall health with doctor-guided changes to my diet and supplement routine. I think seeing a nutritionist is a great investment.

    And really, it's good also that your docs will admit they don't really know, or at least that they don't agree. They can't know everything, and nutrition is not their specialty.

    In case it helps, I am also on Mtx and take folic acid every day - my doc said just don't take it WITH the mtx (I take my vitamins in the morning and the mtx at night). I am guessing that what really matters is the overall dosage - whether you take one big dose a week or smaller doses every day. I did not know that about colon cancer, though...I will do more research. This forum is so great for learning stuff like that! Thanks for the info...

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    Abbyrition (08-17-2013)

  7. #14
    Join Date
    May 2013
    Thanked 42 Times in 31 Posts


    My rheumy recommended between 6-18g (yes grammes) of omega3. I was taking six of the one-a-day capsules. I don't think I noticed a big difference so I don't take them now.

    I don't like to trouble my doc, LOL. But I don't take anything extra either (except maybe lactulose when I need it or activated charcoal every now and then)

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