I hate to whine again, but I am frustrated, scared, hopeless and mad, all at ones.
Ten days ago my rheumies nurse called to tell me the results of my last blood test, I was at work so she left a message, to call her back. I called her back, got her voicemail and left a message to call me back. We kept missing each othres phone calls for ten days, I would call her back, her voice mail came on, i woulleave her a message, and so on. Last wednesday I called her at 8 am and told her, that I would be home all day and to please call me. Of course, she didn't call on wednesday, when I was home, but she called on thursday, when I was at work and her message said, " we really need to talk to you, it is very important, we have to discuss your last blood test results".
So now I am scared out of my mind. This morning I called her from my cell phone at work( we can't have our cell phones at work) and gave her heck on her voice mail, she finally called back and told me that my liver enzymes have gone up from 40 to 190. I have to stop MTX for ever and I am not suppose to take any NSAIDS.
How in the world does he think, I can live without taking anything. I am suppose to go back to the liver doctor, but he doesn't do anything, I have been to him.
She also said to stop taking Calcium, because my calcium is way to high. I DON'T TAKE ANY CALCIUM. Does anybody know why the calcium would be very high? I drink a glass of milk once in a while, cheese and other milk products the same, once in a while.
What am I going to do? No meds, now what? I feel helpless.
I may have been dealt a bad hand, but at least I'm still playing with a full deck. ( most of the time anyway).