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Thread: Deep bone pain and bone scans?

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    Question Deep bone pain and bone scans?

    Hi everyone

    I have Sjogrens syndrome which is quite severe at the moment and since the warmer weather has arrived and our temps are in the 40's, being sun sensitive, my pain levels have gone through the roof. I get a deep bone pain in my lower legs and lower back, it actually makes me feel sick.

    Coupled with the usual muscle aches which are helped by mild gym work at the gym but my legs go really shaky, in fact I go really shaky when I work out so have to limit it and although a stretch offers very short term relief (as in a few seconds), exercise can make me hurt more but I do persist with it.

    I am on MTX injections - only 10mg a week and since I have been on MTX (13 weeks now), I am bruising easily and my GP ran a blood test and it came back OK except for clotting factors which have to be redone - did those today.

    He has ordered a bone density scan as I am on prednisolone and have been for nearly a year now and prior to that I have had 3.5 years of continuous steroid therapy when I was younger.

    Do bone scans purely show up osteoporosis?

    Do any of you get severe bone pain and muscle aches?

    This sjogrens is really kicking my butt at the moment, I wake up in the morning not in pain, but so stiff it takes me an hour to get moving. I have one or two slightly tender fibro points but its nothing really.

    With the summer being upon us where I live, I have to stay inside as just a small amount of exposure can make my joints swell and even attribute to more hair loss.

    Have any of you had bone scans?

    Thanks in advance

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    I don't have sjorgens, but I have had bone scans. They can show a multitude of things. They are pretty well painless-minus having to lay still for quite awhile (if you "lock" up after an inactive period, you start getting the urge to move about halfway through)

    In regards to the "bone" pain, I do get the deep bone like pain, and it is stomach turning. My Right leg is especially bad-it feels at times someone is shoving a screw driver into my shin & cracking it apart. I also get similar pains in my spine, but I have degenerative disc disease & arthritis in my back. I also get it in my elbow, almost a "broken" sort of pain. I assume its from the RA & gout, but there could be a different explanation, I'm not sure.

    I hope you find a solution/aid in relief for the pain! And good luck on your scan!

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    I get foot pain as well which when it comes on, I can barely walk. I dont look at the time in a normal way now, I look on it as 'panadol-o-clock' - panadol osteo is not bad as I cant take NSAIDs.

    Oh well, just wait for the bone scan appointment to come through, my calcium and clotting factors were checked today and I have my MTX injection tomorrow.

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    I also have Sjogren's, however I attribute my deep bone pain to my Fibromyalgia. This pain occurs throughout my body and is often accompanied by the feeling that my muscles are on fire.

    One of the complications of lupus is its effect on bone tissue. Sometimes, an insufficient amount of blood reaches the bone, causing it to deteriorate and break. This is most commonly seen in the hip joint. About 10 percent of individuals with lupus develop bone tissue death
    Bone tissue death and osteoporosis can also be caused by the medications taken for lupus. Corticosteroids (Prednisone/Predisolone) also eat away at the bone, causing osteoporosis and breakage.

    I would suggest that you mention this pain to your doctor so that the cause can be determined and a course of action put into place to address this issue.

    I wish you the very best

    Peace and Blessings
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    Look For The Good and Praise It!

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    Can Sjogren's cause this type of pain? Unfortunately I was one of the lucky ones who developed bone tissue death (Necrosis) on both knees due to steroid usage. I would definitely discuss this possibility further with your doctor. A bone scan may pick on this depending on what stage the decease is, but usually the best test for this would be an MRI, its usually ordered after something's picked up on the scan. Hopefully its not anything like this, and hopefully you'll get a diagnosis and a treatment plan to keep you as pain free as possible. Please keep us posted.
    Diagnosed in 2010 with SLE, recurring pericarditis, pericardial and pleural effusions. Fibromyalgia, Avascular Necrosis on both knees, IBS, Gastroparesis, migraines, DVT's, Pulmoray Emboli. Arthritis, pinched nerves and bulging disk all on the neck. Hyperthyroid issues. Neuropthy, anemia and insomnia "taking it one day at a time, what more can I do"

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    Corella,
    I've also had the deep bone pain and was diagnosed with Avascular Necrosis in 2008. As SaySusie and Linda mentioned, steroids are the usual culprits.
    However, I hadn't taken them, so mine was called "idiopathic", or unknown causes.
    I also have Sjogren's, and after reading what SaySusie said on this thread, I think that I know the cause.
    Mine was in my right knee, and it showed up clearly in the bone scan. I had arthroscopic surgery for it. I took a lot longer to heal than the surgeon expected, but when it finally healed, it helped a lot.
    I also get the muscle aches. The muscles in my calves are in constant spasm, and none of the docs that I have seen seem to know why.
    I'm thinking that Sjogren's has a lot more painful symptoms than any of the docs are willing to admit.
    I hope that your bone scan shows something useful. In the meantime, be very gentle with the exercise. When the docs decided that I had AVN, I was ordered to keep all weight off of that knee until my surgery.
    Hugs,
    Marla

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