When I first started on this "journey", over 20 years ago (not diagnosed with lupus back then), I'd go 20+ hours without sleep from insomnia all the time. Very frustrating when you *have* to get some rest for work... I'd go like that for a week or so, then do what you describe, and sleep off and on for 18+ hours, and maybe do that for several days in a row, getting absolutely nothing done. I was diagnosed initially with rheumatoid arthritis.
For me right now, with a combination of 400 plaq, and 10 pred, I wake up nightly at least once, sometimes quite often, in order to pee. The prednisone raises the blood sugar, which the body tries to lower by "washing" it out. I wasn't "officially" diabetic until this past year. Have you had your blood sugar checked lately? Is your CAD primary, or from the lupus, now that you have that diagnosis?
For me, my pcp is a life-saver. If I wouldn't have changed doctors, I would probably have died from Hashimoto's complications... a good pcp makes a world of difference in getting to the right "specialists"... btw, I'm CVID, where I don't make enough IgM and other immunoglobulins. My sister has Waldenstrom's, which will eventually be fatal. In it, she makes "bad" bone marrow, and the side-effect is excessive IgM production, which leads to extreme fatigue and weekness, with severe joint pain. She also has SLE, which complicated her Waldenstrom diagnosis. Not to worry you, and you do have a CAD diagnosis, but don't let doctor's overlook any other symptoms. Stay on top of things, and write stuff down if you have to, or do like I do, and go to the doc with your spouse with their "smart" phone that has the notes and pictures taken for the last month... |;^)
btw, Welcome to WHL
Last edited by jmail; 12-21-2012 at 03:26 PM.
Reason: oops! forgot my manners!
"There but for the grace of God, go I."
"... His mercy endureth for ever."