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Thread: Lupus cerebus anyone else with this?

  1. #1
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    Dec 2012
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    Default Lupus cerebus anyone else with this?

    Hi my name is vannessa and i am actually on here to try and find out from people that live with this disease everyday any information or ideas to try my father inlaw who was roof tiling in february this year has been diagnosed with 3 types of lupus the worst apparently is the cerebus which has affected his brain which is ofcourse so sad to watch dont get me wrong he has moments of being with it but has more moments that he is not at the moment that is i am looking for any ideas any one that lives it what to expect for the future etc any information please i would love to hear from you

  2. #2
    Join Date
    Nov 2001
    Victorville, California
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    Hi Vanessa; Welcome to our family. As no one has responded to your post yet, I have to assume that there may not be many here who suffer from cerebral Lupus. Lupus is an autoimmune disease and it alters an individual's immune system so that the antibodies it creates attack the body's tissues instead of protecting them. There are several different forms of lupus and cerebral lupus, while not the most common, is very serious because it not only attacks the body's own immune system, but it specifically targets the brain in addition to the rest of the body. Below, I have pasted a link to a site that might give you some more information. Please, if you need more or have any more questions, feel free to do so and someone will always be here to help you: Cerebral Lupus Symptoms |

    Here is some information that I found and hopefully it will help:

    • Individuals suffering from cerebral lupus, as well as the more common systemic lupus, may find that they suddenly bruise easily. This type of illness-related bruising is often caused by a low platelet count in the blood because the body's autoimmune system attacks healthy platelets as well as those that have been infected with viruses or bacteria. Platelets, also known as thrombocytes, are responsible for blood clotting, and the inability to clot properly will ultimately lead to increased or more severe bruising.

    • Fatigue is a very common symptom among patients dealing with all forms of lupus. This particular symptom should be treated very seriously. If the level of fatigue a patient feels increases he or she may be suffering from anemia or another illness-related infection and should seek immediate medical attention.

    • Individuals suffering from lupus are more then twice as likely to suffer from headaches as the average person. While these migraine-like headaches are often treated with traditional medications, such as painkillers and anti-inflammatories, the headaches suffered by those with lupus may also be treated with prednisone--a treatment that does not usually work for those suffering from traditional migraines. Headaches can be experienced by any lupus patient but are often a signal that a patient has cerebral lupus.
    Weight Loss

    • Individuals suffering from both systemic and cerebral lupus may experience weight loss. This symptom is more common in individuals who have active lupus and experience frequent flareups. The reason for the weight loss is usually complications in the GI tract because of illness-related infections.

    • Seizures are not a very common symptom but more often than not point toward cerebral lupus. It is important to seek immediate medical attention if a patient suffering from lupus has seizures. While they may be indicative of the development of cerebral lupus, they may also be a side effect of other lupus medications, and a doctor will need to either alter the dosage or change the medication.
    Memory Loss

    • Individual suffering from cerebral lupus tend to have memory problems. These problems are caused when a patient's antibodies begin attacking her central nervous system (CNS). This symptom should be closely monitored as well because it may also be a side effect of the medications a patient is taking to treat his lupus symptoms.

      I hope that this has been somewhat useful to you.

      Peace and Blessings
    Look For The Good and Praise It!

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    steve.b (12-18-2012)

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