Hey there Tiff, welcome to WHL, and the wonderful world of "I'm a doctor, you're not" that you've also experienced. It's amazing sometimes when you think about it, how many doctors' kids whose college I've helped pay for, or similar, with all the money me and my insurance have paid out over the years. You'd think they'd be grateful to have sick people asking them questions. But I have encountered quite a few docs over the years that have been great, probably over a 2 to 1 ratio anyway, but we always remember the rude ones, especially the rheumies... tic.
Anyway, longsleeves and slacks, hats and even gloves, along with sun screen have become my daily routine, and even though it's "winter" here, I'm still having to cover up. I'm beginning to suspect that the "filtered" flourescant lights where I work have been replaced as they wear out with cheaper unfiltered alternatives, since I've been doing what I'll call mini-flares too often the last few weeks. It takes some getting used to changes you have to implement in your life to accomodate lupus, but you'll get the hang of it. Here's to hoping for at least a reduction in your symptoms, and to finding a good doctor who's not a jerk...
"There but for the grace of God, go I."
"... His mercy endureth for ever."