Hi Nicole, just to say "Hi!" and welcome to the WHL forum. Read all you can on the subject, being careful of the source of info, and ask questions of all your doctors. If they don't explain something to where you can understand, have them try again. If you are like some of us, you'll have to start writing things down in order to remember them, or start using your "smart" phone, to help you remember important points and symptoms for the docs. Wishing you well, praying for good health.
"There but for the grace of God, go I."
"... His mercy endureth for ever."