So reading this thread and the replies I'm seeing so far, I definitely should consider calling my doctor more often. I tend to suffer through symptoms of severe flare, "lupus flu", extreme joint pain and swelling to the point that I can't drive and can barely walk up stairs, fever, extreme malaise and fatigue for weeks and weeks and weeks before I call my rheumy with the "enough is enough"! So far I've had 3 flares lasting 1-3 months each this year and I've called him once for a 6 day prednisone pack.
I guess my hesitation stems from not wanting to seem like a complainer, like I can't "tough it out" and based on knowing that there are countless other Lupus sufferers out there who have it worse than me!
It's tough. I think I may make an appointment again in the next few weeks so he can follow up on some of my symptoms from the last few months and decide what to do. There's of course a part of me that really just wants to avoid the daily prednisone regamine that I'm sure he's going to recommend as long as possible. But I have to balance that wishful thinking with the need to be able to continue to function every day and not get so sick that I can't work or take care of my daughter. : /
Long story short, don't follow my example SleepyInSeattle, call your doctor right away and see what he can do to help. Hope you feel better soon.
"Fortuna Favet Fortibus" ...Fortune Favors the Brave.
~ Diagnosed SLE Lupus, Endometriosis, Anxiety Disorder, IBS~
Meds: 400mg Plaquenil, Prednisone 6-day pack (for flares), 800mg Ibuprofen 3x day, Xanex (rarely), Vicodin (rarely)
Supplements: Omega 3/6/9 complex, 2000iu Vit D, Iron/B12, Calcium, Folate complex, Cranberry, Probiotic, MSM/Glucosamine.