tomcatsgirl, better to have the diagnosis than not. I went undiagnosed too long, and it's done me harm. Now that I go into a medical facility and say "SLE", the other docs now take matters much more seriously. 'Course, sometimes I'd rather not have to deal with the extra attention (and testing), but it is necessary. Like steve.b says, it def needs to be brought under control. I'm now on 10mg predisone a day, to supplement my plaquenil, which has done wonders for my current situation, although there are other aspects of it that are still running rogue, causing other issues. It can be a viscious circle. Like you, I'm in the process of finding old medical records. The difficult part for me is remembering who I saw, and where... tough to do, with the combination of old-man-itis *and* lupus... |;^) - Wishing you well, and continued success with your doc, and the records hunts.
"There but for the grace of God, go I."
"... His mercy endureth for ever."