Glad you got through it, and are back to your meds, with a bit more knowledge. Did they mention "idiopathic" with that "systemic autoimmune disease"?... tic - They didn't mention sIBM (sporadic inclusion body myositis)? but they did polymyositis and dermatomyositis? I can't remember what-all I've been told about my "symptoms" and the neuro stuff, but there's the length of the onset thing, and the duration of the attack that are sort-hallmarks (along with the skin stuff of the derm) of the myositis thingies to differenciate between them. Did you get to do any EMGs, or EEGs? Those are always *fun*! especially if they do an EMG on your face. 'Course, the wife video'd (sic??) me with her iphone, and I gotta admit, it is kinda funny to see a person's face hopping all over the place. Did you get to do any muscle biopsies?... We'll have to keep each other updated on our neuro stuff Derrie. I've been getting that "I don't know what you've got, but it sure is interesting..." comment since about 1990... lol - with the occasional sob... |;^)
"There but for the grace of God, go I."
"... His mercy endureth for ever."