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Thread: Let's Not Ignore the Eyes

  1. #11
    tgal's Avatar
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    Quote Originally Posted by Shine View Post
    I just want to second what tgal has said here..I have always worn glasses and contacts so went for my routine eye exam the other day. They found swelling of my optic nerve by looking the digital retinal image and did a couple of extra tests. Thankfully it is not severe enough to have caused any vision issues and the ophthalmologist is happy to leave it at that as long as I mention it to my rheumy on my next visit and get in contact if I notice any changes at all to my vision.

    It's important to go, whether you need prescription lenses or not. The eyes give so much away. My brothers kidney failure was picked up by a routine eye exam - who'd have thought it! It's especially important for those of us taking plaq & pred (although I don't think my opthalmologist understood the relevance of plaq as she called me back in 2 years for my general exam...i pointed out that I should see her sooner as I'm taking plaq & pred and she said I can pop back in 1 year for a general eye health check - pressure testing etc - if I would like. Yes i would like!!!)

    So please, everyone go, it's worth 30 mins just to know whats going on.
    You need a new doc! For those of us taking Plaq. we need to see the eye doc at least once a year but most eye specialists suggests 6 months. After finding optic nerve swelling they are requiring me to come back in 3 months to check on it since it can cause irreversible vision loss.

    Just my thought on the matter. I completely agree with your thoughts on everything else!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

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    Hmm. Maybe she doesn't have a great understanding of Lupus - like many healthcare practitioners - and was only bothered about whether it affected my eyesight or not. I think thats another thing to write on the list for the rheumy! Deary me this list is getting longer and longer and longer......!

    Thanks tgal
    I spent 2 years travelling Australia. Check out my travel blog at http://travelpod.com/members/helenlear

  3. #13
    tgal's Avatar
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    It sounds bad but the first question that should be asked of all eye doctors is if they know what a plaquenil eye test is. You will be surprised how many do not. There are special tests that have to be performed on our eyes to make sure that the plaq is not damaging our eyes. There are also other tests that need to be performed to make sure that the other meds that we are on (steroids, MTX to name a few) are also doing no damage.

    Standard eye exams (even the digital imaging) are not enough for our eyes. The kind we need cost more (of course) but are very, very important. You should have one the moment you start your plaquenil so there is a baseline of where your eyes are right now so they can see if there is any deterioration in the vision. The sad part is that many people starting the medicine either don't know that or go to an eye doctor that doesn't do the right kind of testing (which is what I did). We assume they know and they don't. Even worse is when they say they know but they don't.

    Good luck and you are on the right track asking more questions
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  4. The Following 2 Users Say Thank You to tgal For This Useful Post:

    Saysusie (11-20-2012), steve.b (11-21-2012)

  5. #14
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    This is a great thread Tgal, thank you for starting it. I am glad that you are OK for now and that the prednisone helped. Your story was entertaining while being a lesson to us all. Have you still not found your glasses????

    Again, thank you for reminding us how important it is to care for each and every part of our bodies..including the eyes.

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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