Results 1 to 10 of 14

Thread: Let's Not Ignore the Eyes

Hybrid View

  1. #1
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,526
    Thanks
    1,548
    Thanked 1,743 Times in 1,212 Posts

    Default Let's Not Ignore the Eyes

    Well I went to get new glasses today and was in for a big surprise. No new glasses for me until I go see a specialist because it appears that I have Ocular Neuritis or inflammation of the optic nerve. I have to say the way I figured it out was very interesting and had I known what to look for I would have known about it much earlier but this post isn't about that. This post is to remind all of you that once you have been diagnosed with ANY AI disease it means that there is inflammation in your body and you have to keep an eye on ALL parts of yourself, including the eyes.

    Get your eyes checked yearly and pay attention to pain and changes not just because of meds but because of disease. If you notice that you see colors differently from one eye to the other go in to see the eye doctor even if it is not time for your yearly appointment.. You only have one set of eyes and they have to last.
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  2. The Following 8 Users Say Thank You to tgal For This Useful Post:

    BonusMom (10-07-2012), chikititalinda (10-05-2012), Derrie (10-05-2012), magistramarla (10-06-2012), Manderson (10-05-2012), n.mac (10-05-2012), ruziska (10-15-2012), Saysusie (11-20-2012)

  3. #2
    Join Date
    May 2007
    Location
    Seaside, Ca.
    Posts
    3,871
    Thanks
    196
    Thanked 948 Times in 732 Posts

    Default

    Mari,
    My ophthalmologist insists on seeing me twice a year because I take Plaquenil. He wrote a letter to the insurance to make sure that they understood that it is a medical necessity.
    Hugs,
    Marla

  4. #3
    Join Date
    Oct 2008
    Location
    California
    Posts
    1,213
    Thanks
    280
    Thanked 208 Times in 162 Posts

    Default

    Great reminder, Mari!

    I had my annual exam recently and not only were changes noted in my vision, but changes in the eye pressure (which is an indicator for glaucoma).

    Don't take your vision (or health) for granted.

  5. #4
    Join Date
    Dec 2009
    Location
    Atlanta Area - Dacula
    Posts
    1,831
    Blog Entries
    12
    Thanks
    395
    Thanked 414 Times in 335 Posts

    Default

    Glaucoma tests, field vision test, retina scans and oh regular vision test are necessary for us. There is nothing scary than to be sitting at your desk at work and see blood start snaking through your eye. It was a hemorrhage.

    Eye Care is very very important for us.

  6. #5
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,526
    Thanks
    1,548
    Thanked 1,743 Times in 1,212 Posts

    Default

    I have debated and debated on posting this but I really think it is important.

    The eye test is about the yes but it is also about more than the eyes. About 5 months ago I realized I could not see! I mean it, my vision had become very bad and I really couldn't see well at all! As most of you know I have been waiting and waiting for my Medicare (2 1/2 years) and it finally began Oct 1st. To me, my eyes were the least of my issues and I figured I would deal with them somewhere down the line. Well, that is what I thought until I lost my glasses on Oct 2nd. If I thought I couldn't see WITH my glasses I sure couldn't see without them (just in case you are interested I lost them inside my house and have yet to find them). The loss of the glasses moved the eye examination to the front of the the line.

    Everything went well during the first part of the test, no issues caused by my meds. I thought I was home free. We went in to the exam room to figure out my prescription. They pull the machine in front of my face and we begin. "Which is better, 1 or 2? 2 or 3". On and on until we got that eye where it needed to be. Now the doctor says "OK, on to the next eye and she switches the machine so the other eye is covered. I gasped because the entire room changed colors. Yes, it changed colors. Long story short it turns out that I have Optic Neuritis in one eye. The problem wasn't actuallt my eyes it was that there was inflammation in my optical nerve (the nerve that runs between the eye and the brain) so the messages were not going through. It also explained the headache I had on that side of my head for months and never mentioned because I just assumed it was "another lupus thing".

    I couldn't get my glasses because I have to go see an ophthalmologist on Friday (I had seen an Optometrist who had all of the machines to test my eyes for my special needs) but the good news is that the Optometrist could already see that the shot of steroids that I had received the day before appeared to be working and I can tell that it has continued to work so I am feeling very positive at this point.

    That is why I started this thread. They eye check-ups see not only the eyes but further inside and they can help protect us from damage we don't notice. As the stories above have all shown, don't put those appointments off!
    Last edited by tgal; 11-21-2012 at 06:57 AM.
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  7. The Following 2 Users Say Thank You to tgal For This Useful Post:

    BonusMom (10-16-2012), Saysusie (11-20-2012)

  8. #6
    Join Date
    May 2007
    Location
    Seaside, Ca.
    Posts
    3,871
    Thanks
    196
    Thanked 948 Times in 732 Posts

    Default

    Mari,
    I am so glad that you are finally getting the care that you need.
    Hugs,
    Marla

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •