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Thread: New Here - Long Time Lupie with Major Flare

  1. #1
    Join Date
    Jun 2006
    Victoria BC
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    Default New Here - Long Time Lupie with Major Flare

    Hello all, am glad to find the site.
    I have been diagnosed for 19 yrs.
    I considered my self lucky only having joint pains, hair falling out and huge water retention in my legs, I had the blisters in the roof of my mouth too.
    I haven't been on prednisone for about 10 yrs, I call it Jekyll and Hyde meds! I have been able to manage the odd flare with Naproxen. Not this time! I found no relief and had to resort to the dreaded drug.
    I have had new symptoms and feel like a mess, but of course, look 'great' doing it!
    Was surfing and found you here. It is a relief, since I have no friends with lupus and grew tired of the tiny support group in my town, they were getting way to 'out there' for me.
    I do believe in divine healing, it's in God's time though, so basicly His will.
    Hope to chat with some of you soon.

  2. #2
    Join Date
    May 2006
    Washington State
    Thanked 0 Times in 0 Posts


    LOL on the Jekyll and Hyde! :lol:

    I HATED taking steroids - I hate how crazy they make me! And the 700 other side effects. I swore I would never take them again, but after the latest flare I changed my mind and wanted ANYTHING to "make it go away."

    I hope your flare doesn't last any you can go back to feeling good again soon - this is a fun, positve group to share with.

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