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Thread: Why you have multiple docs...

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    Default Why you have multiple docs...

    OK, not a joke (at least, I can't think of one just yet), but do you know the difference between a dermatologist, and a rheumatologist? The derma guy says "hypersensitive allergic reaction of idiopathic nature" (or whatever it was he said), whereas, the rheumy looks at the pics of my rash on my wife's phone and goes "that's a bad lupus flare! Did you call my office when this happened?"... "What blood work did they do, and where are the results?" So now I've got to get ahold of my pcp office and have them send him the blood test results he was supposed to get before. He did get the skin biopsy results, and says it's more "inconclusive" than anything... Glad I went to see him today (routine follow-up). I've now got a "new" routine to follow if it happens again. I've also been instructed to wear sunscreen all the time, not just when expecting to go outside. He says the rash looks to him like it was photosensitivity. I also have to try to remember the few days prior to the flare, and think if I was someplace where I'd have been over-exposed to sunlight or "bad" flourescent lighting, or if maybe if I ate something "different" that may have elevated my photosensitivity (klonopin??)... I can't remember what I had for breakfast today, must less 6 weeks ago... tic - Anyway, rheumy says to tell the front desk next time that I'm flaring and to tell them to get me in to see him pronto, and not to let them dictate why or when, just tell them "now"... I should have listened to my wife (she wondered at the time if it wasn't a lupus flare)... lolol

    Ooooh... I just noticed that I'm a "Bear Cub" now. 600 posts?...
    "There but for the grace of God, go I."
    "... His mercy endureth for ever."

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    The docs make me think of that old story about the 6 blind men and the elephant....the guy at the tail thinks an elephant is like a rope, the guy at the leg thinks it's like a tree, the guy at the ear thinks it's like paper, etc....[eyeroll...]

    Everybody sees it through their own specialty.....the truth is probably somewhere in between what they all say! :-P

    Sounds like what you need is a burqa.... :-(

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    Welcome to the world of the photosensetive! Yep, I have to wear sunscreen everyday because a trip to the grocery store can send me into a flare. When going outside it is long pants and a hat too (actually, on days I am feelings bad the hat goes on even when going to the store).

    Gotta love this disease
    Mari

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    Dang fingers!!! Closed by mistake!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    My own theory about multiple doctors is multiple billings!

    But giving them the benefit of the doubt-since I do like my doctors I suppose they all have thier place.
    Funny thou they never seem to contradict each other.

    Jmail-now that you know you are sun sensitive you may find it helps alot (the knowledge not the sensitivity)
    I have found out the hard way how important it is to stay well covered-when first told I covered up mostly but figured a little sun wouldn't hurt as long as I wasn't seeing any visible signs such as redness or swelling.
    Boy was I wrong! 2-3 days after moderate sun exposure I feel like I got hit by a truck(lorry for you europeans and aussies)

    As far as I'm concerned no sun is good sun! I never go out without sunscreen,long sleeves and hat.

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    Quote Originally Posted by n.mac View Post
    ...... I feel like I got hit by a truck(lorry for you europeans and aussies)......
    us aussies speak normal english too. we know how to say truck.
    its our silly ancesters that say lorry.

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    Roight! Well, I already knew I was photo-sensitive, but had never had to completely avoid light. I've been using hats & long sleeves for the last couple years, and haven't been in a pair of shorts in probably 10 years... I still can't recall any more exposure than normal... guess since they've been doing all these blood draws, that I've turned into a vampire... hmmm.

    Let's see, sleepy: pcp, rheumy, hema, pulmo, neuro, allergist.... 1, 2, 3, 4, 5, 6... 'magine that, six of 'em... Does that make me the old grey elephant in the room?... tic
    "There but for the grace of God, go I."
    "... His mercy endureth for ever."

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    Neutragena has 100spf face cream that seems to have stopped my face rashes (and boy did I get them!). I also do a complete spray down with 100spf out of the shower. I hate smelling like sunscreen but the sun has started to sap my energy like no tomorrow! When I drive home in the afternoon, it's with the radio on high and the air condition hitting me in the face to keep alert. I've come to love overcast days. As far as multiple doctors, I don't even count. I just call them my "ologists" because I have so many. Today I had a neurologist diagnose me with narcolepsy. Pulled that one out of his...well, you get the picture. And he was so snide about talking with my Rheum. Today was the one and only day he will see a dime from me. A good 90% of my docs have been caring and considerate and very invested in my treatment but it's docs like this that make us suspicious and hypersensitive when we have our appointments.

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    Ahh - We're all vampires!
    (I type this while watching "Dark Shadows").
    Hugs,
    Marla

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