Results 1 to 10 of 13

Thread: Does raynaud's always include a colour change in the affected extremities?

Hybrid View

  1. #1
    Join Date
    Sep 2012
    Posts
    25
    Thanks
    0
    Thanked 3 Times in 2 Posts

    Question Does raynaud's always include a colour change in the affected extremities?

    I am yet undiagnosed with a rheumatic AI but am in the process of being tested (by my GP) after years of dismissing symptoms to "getting older" and unlucky genetics. I'm collecting all my past symptoms onto paper so I will be prepared to help a rheumatologist diagnose me, or push to see a rheumatologist if my tests aren't definitive.

    Anyway, my question is: Does Raynaud's always have to involve a colour change when your toes and hands get cold?

    I've had cold fingers and toes for decades and thought nothing of them; cold nose too... and sometimes bum (my backside, unfortunately, can be considered an extremity LOL). It's the type of cold that others can feel; I can chase my kids around the house with threats to touch their bare bellies with my fingers. If I sit at the computer f and they will run shrieking. If I sit down for an hour, my hands and feet get so cold, they will hurt a bit and it takes some time and effort to warm them up. At bedtime, I just assumed they were getting so cold because my bp drops and pulse slows, and I have a low bp and pulse as it is.

    Anyways, I now know that this could be Raynaud's but I wonder because my hands never change colour and my feet only occasionally get a bit reddish. Thankfully my nose hasn't gone blue either... I've never checked if my (ahem) posterior extremity changed colour but I doubt it. LOL I live in western Canada near the Rockies so it's cool to cold here about 8 months of the year but weather can't always be the cause of my coldness. It's unseasonably warm today, already up to about 20C but I've been sitting at the computer for 45 minutes and my fingers are cold and my toes are starting to ache.

    Thanks for any insights you can offer.

    Could that be a symptom of Raynaud's?
    Nicole S

    Acceptance is the key to happiness.

    ITP - 1993
    Celiac - 2012
    Hashimoto's - 2012

    CANADIAN

  2. #2
    Join Date
    Jun 2011
    Location
    Chicago
    Posts
    255
    Thanks
    27
    Thanked 82 Times in 69 Posts

    Default

    My fingers and feet are always freezing, but only the fingers turn a very very slight bluish color at the very tips. And altho my feet are freezing, my toes are burning. Not diagnosed with anything yet but seeing a new rheum in October.

  3. #3
    tgal's Avatar
    tgal is offline Super Moderator Super ModeratorEmperor of the Solar System
    Join Date
    Jan 2010
    Location
    Houston, Texas
    Posts
    4,526
    Thanks
    1,548
    Thanked 1,743 Times in 1,212 Posts

    Default

    Raynauds is more than just having cold fingers/toes/nose ect. It has to do with the narrowing of the arteries which slows the blood flow and does cause color change. Below you will find a link to the Mayo Clinic's info on this condition. Hope this helps!

    http://www.http://www.mayoclinic.com...isease/DS00433
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







  4. #4
    Join Date
    Sep 2012
    Posts
    25
    Thanks
    0
    Thanked 3 Times in 2 Posts

    Default

    Manderson - Cold feet and burning toes... The only time I get that is when I've been out in the cold and not dressed warm enough (we get into the -20'sC for a few months of the year), and then when I come back in from the cold it feels like my coldest parts are burning as they heat up again... or thaw. Good luck with your new rheumy!

    Thanks for the link, Mari. I looked at it, and some others and it looks like the colour changes have to be observed for it to be considered Raynaud's. I've had some redness almost to the point of purple but never red, white and blue. I guess it's just low BP, low temperature (I'm usually in the 96'sF) and Canadian weather. I'll make a note of it for the docs since I seem to have colder hands and feet than most people I've met.
    Nicole S

    Acceptance is the key to happiness.

    ITP - 1993
    Celiac - 2012
    Hashimoto's - 2012

    CANADIAN

  5. #5
    Join Date
    May 2007
    Location
    Seaside, Ca.
    Posts
    3,871
    Thanks
    196
    Thanked 948 Times in 732 Posts

    Default

    Nicole,
    I've had the same thing with toes that turn purple, but I can't blame the weather. Where I'm living, the temp is always between 55-70 degrees, year-round. My feet and hands start to get cold as soon as the sun starts to go down. I wear warm fuzzy socks to bed.
    I mentioned it to my rheumy, and she said "Raynauds" without even looking. She just said "wear warm socks".
    Hugs,
    Marla

  6. #6
    Join Date
    Sep 2012
    Posts
    25
    Thanks
    0
    Thanked 3 Times in 2 Posts

    Default

    Marla, I have a mental picture of your doc with her nose stuck in her notes and not even looking up as she deadpans, "Raynaud's, Wear warm socks." LOL So it could be Raynaud's (perhaps mild?) if it's without a colour change? I'll mention it when I see my doctor. Thanks.

    Sometimes I wish this AI stuff was a bit more black and white; all this grey gets a bit ... I don't know... Somewhere between confusing and frustrating. lol
    Nicole S

    Acceptance is the key to happiness.

    ITP - 1993
    Celiac - 2012
    Hashimoto's - 2012

    CANADIAN

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •