Isn't it great when our AI issues get to have friends to tag along? I would just hate for them to be lonely. I think I get to add another acronym to my growing list of issues! Looks like I have trigeminal neuralgia! I think I've had it for a while but never knew what it was. Last night I had the worst attack of it I've ever had. From my temple all along to my eye socket and the side of the bridge of my nose, down to my upper jaw area, like where my wisdom tooth used to be, felt like I'd been hit with a 2 by 4 repeatedly. OMG, worst pain ever! I wanted to just cut my head off!! The pain seriously blows my kidney stone collection out of the water.
Does anyone know if this is caused by inflammation? I've been taking 800mg of ibuprofen every 8 hours for a few months (and interestingly enough, haven't had this happen in a few months, and never this bad), but I've had to stop taking it for a procedure I'm getting next week. Only thing I have right now for pain is tylenol. Yeah, that didn't help at all!!! So I wonder if whatever is causing this was being held off by the NSAID and without any it went crazy?
I'm going to my new Dr. today that took over for my old Dr. I haven't seen her yet, she wants to see me before she refills my vicodin. I think they must think I'm a pill seeker or something. Well, let me tell you, if you had a dozen kidney stones you'd be seeking some relief!!! lol!! So no, I'm not a pill seeker, but I do want some relief until they blast these things out of me. SO.. I will talk to her today about it and see what she thinks. I can't figure out what else it could be. I went online this morning to see what it could be and TN was all that came up. I think I remember reading that a few people here have it, so figure it must come along for the AI ride sometimes?
So now I officially have hypothyroidism, Raynaud's, and now most likely TN, and next week I'll go to the rheumy and hopefully find out if I have Lupus + myositis or Dermatomyositis. Maybe an overlap? I don't care what they call it, I just want to feel better!!!!